About PTSD UK
PTSD UK was founded in 2015 by Jacqui after her own experiences suffering with PTSD. The lack of understanding, provisions and information made Jacqui realise that help and education is needed for those struggling with Post Traumatic Stress Disorder – along with their friends and family.
PTSD UK is the only charity in the UK dedicated to raising awareness of Post Traumatic Stress Disorder – no matter the trauma that caused it. We believe that supportive and reliable knowledge really is power when it comes to PTSD & C-PTSD. If you understand the types of trauma that can cause PTSD & C-PTSD, the physical, mental and emotional symptoms that are experienced, and, most importantly, the treatments that can help you, then you’ll be able to start down the path to recovery when you’re ready.
We know first-hand that PTSD & C-PTSD can make you feel helpless, alone and isolated from those around you. So, we hope that knowing that someone understands a little more about it, is able to empathise with how you feel and will be patient with you, will help you feel more in control and ready to tackle it head on.
PTSD UK is here to provide resources and tools to inspire empowerment and resilience in everyone affected by PTSD & C-PTSD, to help them work towards recovery. We campaign to raise awareness of the condition, reach out to high-risk communities, help shape UK healthcare policies, and give everyone the belief that ‘Tomorrow CAN be a new day‘.
Research shows that 10% of people will experience Post Traumatic Stress Disorder at some point in their lifetime – but it’s estimated that up to 70% of people with PTSD & C-PTSD in the UK do not receive any professional help at all:
- Some people may realise they are struggling to cope after trauma, but are unaware they have PTSD. They may feel that their symptoms are just part of their life now – even if they’re debilitating and affecting every part of their life.
- For others who have a PTSD diagnosis, they may not know that treatments to help them recover are available. Just over a decade ago, people still thought that PTSD was an incurable condition, but more recent evidence and research proves it is possible for PTSD and C-PTSD to be successfully treated many years after the trauma occurred – but the treatment options for PTSD & C-PTSD are not as well-known as they need to be.
- Additionally, people with PTSD & C-PTSD are often misdiagnosed as they can develop additional disorders such as depression, substance abuse, problems of memory and cognition, and other problems of physical and mental health. These ‘co-morbid’ conditions are what gets diagnosed, and the PTSD & C-PTSD is left to get worse in many cases.
- For many people however, they’re simply unable to articulate how they feel, or feel able to reach out for help.
Our charity aims to raise awareness of PTSD & C-PTSD in three main areas – it’s causes, symptoms and the treatments available. These 3 areas are of vital importance to those suffering with the condition.
- Causes: Many people have pre-conceived ideas of PTSD & C-PTSD, and what can cause it. There is a widespread misunderstanding that PTSD & C-PTSD only affects veterans, or those in the armed forces (likely due to it’s previous name of shell-shock) but it can infact affect anyone, of any age. It’s vital that people are aware if they (or a friend or family member) have suffered a trauma, they should be mindful of trauma symptoms, and the possibility of PTSD.
- Symptoms: There are two areas in which knowing the symptoms of PTSD are useful. The first is that people may recognise the symptoms in themselves (or a friend or family member) and reach out for help – starting their recovery process. The other is those who are suffering with PTSD, can understand that what they’re thinking or feeling, or how their body is reacting, is ‘normal’ for someone with PTSD – this can be of huge comfort knowing that once the PTSD is resolved, those symptoms will be too. Some symptoms of PTSD can feel totally unconnected to the original trauma or the condition itself, so it’s really important people can recognise just how PTSD can affect them.
- Treatments: PTSD is a misunderstood condition in many ways. Information about the treatments available is lacking and, at times incorrect. Just over a decade ago, people still thought that PTSD was an incurable condition, but more recent evidence and research proves it is possible for PTSD and C-PTSD to be successfully treated many years after the traumatic event occurred, which means it is never too late to seek help. NICE guidelines recommend EMDR and CBT as the main options for the treatment of PTSD and there are also a variety of therapies and activities than can help ease PTSD symptoms while you wait for treatment.
In addition to those suffering (and those around them), it’s vital that healthcare professionals are aware of all of these elements to look out for in their patients to avoid misdiagnosis, incorrect treatments and lack of the best resources for their patients.
What PTSD UK does
- Raising Awareness and being a voice for people with PTSD & C-PTSD We produce and distribute supportive, reliable, high-quality and easy to understand resources, tools and information which are all backed by science and research. These help everyone (including Government, Medical professionals and the general public) understand the causes, symptoms and treatments available for PTSD with the hope that people will be more understanding and informed, and know more about the daily reality of living with PTSD. We also work with the media (reviewing and informing scripts etc) to ensure accurate, non-stereotypical and informed portrayal of PTSD in films, radio and television and have already collaborated with script writers from a variety of different productions including ITV’s Emmerdale, a number of BBC dramas and documentaries, and a new Warner Bros International film.
- Provide resources to help empower those who need hope We support and hope to empower people affected by PTSD (along with their friends, family and carers) by providing knowledge, lived-experiences and resources to help them reach out for help, take control of their diagnosis, access the support and care they are entitled to, make informed choices, all to lead towards successful, sustained treatment and recovery for them or their loved one. Tomorrow CAN be a new day.
- Listening Whether someone simply needs to offload their thoughts, direction on how to get help, or just know that they are not alone, we are here to provide resources and a warm welcome (even over email!) with compassion, experience, and hope that Tomorrow can be a new day.
- Improving Services and support We have experienced, and recognise the gaps in the current service provisions for people with PTSD in the UK, so we work with, and campaign to, the Government, organisations, policies and guidelines relating to the care and awareness of those with PTSD, ensuring that we’re all driving towards the same goal – that PTSD is recognised, diagnosed and effectively treated as quickly as possible for everyone.
- Research We promote, undertake and collate research that can answer vital questions about PTSD and how people affected can be supported, and how treatments and care can be evaluated, improved and be made more accessible.
- Sharing the knowledge Our resources are used by a variety of health professionals, organisations and other charities – we want the knowledge about PTSD to be as far reaching as possible so we always offer interviews and case studies to media outlets, research papers and projects where possible. Our information and resources are referenced by a variety of organisations and publications including The Economist, BBC, ITV, The Independent, Women’s Health, CNN, Huffington Post, The Metro, The Week and The Big Issue.
- Reaching Out We don’t expect people just to find us – sometimes, we need to go to them. We reach out and establish links with high-risk communities across the UK such as the Emergency Services, Rape Crisis Centres, and Victim Support Services along with other charities which support people who are at risk of PTSD such as parents of children with disabilities
A note on our charitable status
PTSD UK is a registered SCIO SC045995 and we are regulated by OSCR based in Scotland (as we were established in Scotland). We are what is considered a ‘cross-border charity’, (we operate in both Scotland, and England and Wales) and this is the case as there are no provisions under English and Welsh law which oblige charities established under the law of Scotland to register with the Charity Commission. Scottish charities are therefore free to operate in England and Wales, while being regulated solely by OSCR, and not by the Charity Commission.
If you were inspired by our mission...
...please consider supporting PTSD UK with a donation to enable us to provide more information & resources to help us to support everyone affected by PTSD, no matter the trauma that caused it
Are you looking to fundraise for PTSD UK?
THANK YOU!! We are a small charity so our main goals at the moment are to increase awareness that we exist (so people can get the support and information they need) and to maximise fundraising to allow us to achieve our mission of supporting everyone in the UK affected by PTSD, no matter the trauma that caused it.
PTSD UK Blog
You’ll find up-to-date news, research and information here along with some great tips to ease your PTSD in our blog.
How writing can help people with PTSD An empty notebook can suggest limitless possibilities. It’s also one of the simplest and best tools to improve your mental health, including when you have a diagnosis of post-traumatic stress disorder. Many people
How photography helped me manage my PTSD – Guest Blog Matt Dolinski discovered that photography helped him managed his PTSD and other mental health issues. Starting by taking photos on his mobile phone, Matt is now organising ‘Photo Walks’ to